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My father was diagnosed with a disease called 'Progressive Supranuclear Palsy' (PSP) towards the end of 2006. In hindsight he probably had it for approximately seven years which is the average life expectancy of a patient with this disease.It is a brain disease affecting the area of the brain that controls balance, movement, vision (particularly upgaze and downgaze), speech, the ability to swallow and behavioural changes.
Unfortunately my Father displayed all of these symptoms.Because it is very difficult to diagnose, my Father attended lots of doctors and consultants over the years and each symptom was treated in isolation.
By the time he was finally diagnosed he was in the latter stages of the disease. It was extremely difficult and frustrating for him and for the family. At that stage we came in contact with 'The Progressive Supranuclear Association' in Northern Ireland. They were extremely supportive, not only to us as a family, but to all my Father's carers - Doctor, Physiotherapist, Occupational Therapist, Home Help etc. They provided packs containing information relevant to his care.
My Father bore the disease with incredible patience and dignity. He died in the comfort of his own home in the care of his family, supported by a wonderful medical team. From our point of view having the support and understanding of the Association was of immense help and comfort.Raising awareness of PSP, amongst the medical profession, the Government and the general public at large is essential as it still remains relatively unknown.
This is an opportunity for us to raise awareness of PSP and the work of the Association. And if my Father's death can make a difference then it will not have been in vein.
For more information http://www.pspeur.org/ or to make a donation to the climbers contact Noel or Brian 016778544
